What is Dyskinesia?
You may notice dyskinesia as:
It’s important to understand that dyskinesia and tremors are not the same
|What is it?|
|Uncontrollable back and forth shaking movement that mainly affects the arms or legs when at rest and stops for the duration of a voluntary movement. Tremors are a common symptom of PD||Sudden, uncontrolled, jerky movements caused by PD progression and long-term use of levodopa at higher doses. Dyskinesia can be very noticeable|
|Where will I feel it on my body?|
|Tremors are usually felt in the hand or foot and appear when a person's muscles are relaxed or at rest. Tremors may start on one side of the body but can include the entire body||Dyskinesia can affect the neck/face, arms, legs, torso, or entire body|
|What does it look like?|
|During a tremor, the affected body part trembles or shakes when performing actions like resting or walking||Dyskinesia can also look like fidgeting, head bobbing, writhing or wriggling, or like the entire body is rocking back and forth|
GOCOVRI is not an approved treatment for tremors.
Dyskinesia is common in PD
Only your doctor can properly diagnose if you have dyskinesia
Talk to your doctor or healthcare provider if you think you might have dyskinesia
The reality of dyskinesia
This is what dyskinesia may feel like
Many people with PD have said they experience a mix of feelings and emotions because of dyskinesia, which can affect day-to-day activities. Even before dyskinesia hits, there's often a feeling. Some people with PD describe it as the same feeling you get right before a storm.
Suddenly, you may feel your hand pull away. A twitch, a jerk—and you may think, "not now." You may sit on your hand. Or hold down your leg. Or shift your body. Or try laughing it off. Many people with PD describe doing whatever they can to get through it.
These moments of dyskinesia may lead to spills, drops, and breaks. At the wrong time, those moments become interruptions at work, home, or when you’re out socially. Managing all of this can be frustrating and get in the way of your best laid plans.
Dyskinesia may even have you and your doctor rethinking your PD treatment plan.
Watch Ervin, a person with PD, describe how dyskinesia impacts him
Dyskinesia is troublesome if it's troublesome to you
What could reducing dyskinesia mean to you?
Set New Goals
Take some time to think about the goals you would want to achieve with less dyskinesia. Write them down and discuss them with your doctor
Finding a Different Way
Good movement control isn't easy with dyskinesia
GOCOVRI isn’t a dopamine-based medicine. GOCOVRI is believed to work through a different receptor in the brain that is equally important in PD, known as glutamate. GOCOVRI doesn’t interfere with levodopa.